Here is the link to get the library special package
Create possibilities with hidden differences
Creative ideas to build support, understanding, change and compassion to provide hope instead of fear for persons living with the challenges of fetal alcohol spectrum disorder (FASD).
Wednesday, March 2, 2011
Sick and Tired of Winter
I need you all during this while I am down for a few counts
http://specialchildren.about.com/b/2011/02/11/vote-for-favorite-special-needs-memoir.htm
Our furnace is out - needs a new motor. I got blessed with the crud from Liz and Karl and the Internet was down all night.Braided Cord is not 100 points behind My Baby Rides the Short Bus - help pull us out guys, my little engine is pretty slow today.
Sunday, February 20, 2011
Saturday, February 12, 2011
Braided Cord - Tough Time In and Out Finalist for About.com Memoirs
We were surprised yesterday that Liz's new book Braided Cord is a finalist in About.com. You can vote once a day for as many days as you like between now and March 8, 2011. Liz shares her adult transition with fetal alcohol to build understanding and hopefully create a catalyst of strategies for the next generation of affected young people.Just click here and vote: Braided Cord
(Please consider joining us in helping her win this award - all it takes is a quick click!) Braided Cord
If you want a copy of her book click here
List Price: $24.95
6" x 9" (15.24 x 22.86 cm)
Black & White on White paper
320 pages
Black & White on White paper
320 pages
Better Endings New Beginnings
ISBN-13: 978-0984200719
ISBN-10: 0984200711
BISAC: Self-Help / Substance Abuse & Addictions / General
ISBN-13: 978-0984200719
ISBN-10: 0984200711
BISAC: Self-Help / Substance Abuse & Addictions / General
I was born an addict and ever since I was tiny I have overdone, overlooked or overwhelmed myself. I was born with fetal alcohol spectrum disorders, otherwise known as FASD. That means my mom drank while I was trying to grow in her stomach and because of her drinking some of my parts got mixed up and didn't grow too well. My differences are hidden and that's a real pain, because it is easy to judge a person by what you see.
The most difficult parts of my life are caused from my brain which was probably the most affected. I have trouble learning new things and I live in a world that is louder, softer, harder, scratchier, noisier, shakier, slippery and more chaotic than most of the people reading this. I want you to imagine what it is like to feel the seams of your socks, the label on your clothes, the flicker of fluorescent lights, the mumblings and rumblings of every noise around you, and then try to learn new things.
Overwhelming.
Yes, that is what it is often for me.
My mom's drinking ripped away who I was to be and helped create who I am today and what I am able to be. If she had known how it would change my life I bet she would have made a different choice. But she didn't, and we can't change how things are. I am as I am. I can't even talk to her about it. She's dead. I was a foster baby and then adopted.
...
I had to fail first in order to succeed.
And I failed over,
and over,
and over again.
...
I am just one of hundreds of thousands of people whose lives are affect each year by alcohol consumption before breathing your first breath of air. For those of you who were not pickled before birth, who believe you are wiser than I am, I ask you to take my thoughts and use your brains to make a difference.
The most difficult parts of my life are caused from my brain which was probably the most affected. I have trouble learning new things and I live in a world that is louder, softer, harder, scratchier, noisier, shakier, slippery and more chaotic than most of the people reading this. I want you to imagine what it is like to feel the seams of your socks, the label on your clothes, the flicker of fluorescent lights, the mumblings and rumblings of every noise around you, and then try to learn new things.
Overwhelming.
Yes, that is what it is often for me.
My mom's drinking ripped away who I was to be and helped create who I am today and what I am able to be. If she had known how it would change my life I bet she would have made a different choice. But she didn't, and we can't change how things are. I am as I am. I can't even talk to her about it. She's dead. I was a foster baby and then adopted.
...
I had to fail first in order to succeed.
And I failed over,
and over,
and over again.
...
I am just one of hundreds of thousands of people whose lives are affect each year by alcohol consumption before breathing your first breath of air. For those of you who were not pickled before birth, who believe you are wiser than I am, I ask you to take my thoughts and use your brains to make a difference.
Saturday, January 22, 2011
Sunday, October 24, 2010
Wednesday, June 30, 2010
Let My Yes, Be Yes and My No, Be No
After almost 30 years of parenting an array of complex children who have grown into now adults I learned that Yes, my no must mean no. It has to. A 'no-boundary' must be clear and visible.
Working with tough kids you could spend all day using NO and sorry to say a NO used to often blows through one ear and out the other never stopping to allow a thought.
I have learned that one must use that NO frugally because it is a precious word of great power. For atypical children/adults, especially those with brain injury it sends them to the end of a cliff in a free-fall without answers. The word NO becomes a set up for defensive behaviors.
My friend and I were comparing notes and we have both come to the same conclusion - we use YES most often, whenever we can. So NO sticks when it is needed, and we can be strong enough the stand still without bending.
Working with tough kids you could spend all day using NO and sorry to say a NO used to often blows through one ear and out the other never stopping to allow a thought.
I have learned that one must use that NO frugally because it is a precious word of great power. For atypical children/adults, especially those with brain injury it sends them to the end of a cliff in a free-fall without answers. The word NO becomes a set up for defensive behaviors.
My friend and I were comparing notes and we have both come to the same conclusion - we use YES most often, whenever we can. So NO sticks when it is needed, and we can be strong enough the stand still without bending.
- How can we do that with tough kids who look like they are defying or challenging us?
- How do we keep control while giving them a path of acceptance?
- How do we use YES, so we create boundaries and don't become a doormat?
When I am asked to do something
- I do not have time to do,
- I don't want to do,
- I don't know how to do.
I use the following statements:
If it is something I also want to do and it is a good idea, I make an appointment
- Yes, we can go to the park tomorrow after you eat your lunch or after your nap. Then I remind them in the morning - Remember after your nap we get to go to the park.Yes, we can deliver those job applications, after you bring them back to me filled out. If you need help filling them out I am available right after dinner.
I provide abilities to accomplish the idea
If it is something I can't do I say so.
- I can't do that because it is (describe behavior - cheating, lying) and I like to look at my face in the morning and say smiling "Good morning, Jodee, this will be another grand and glorious day.)
My moral standards need to stand firm.
If it is something I don't know how to do I say so.
- I don't know how to do that, can you find out how to do that for me or maybe we can find out how to do that.
Together we can make this happen.
Share your ideas so that when a NO has to happen it can stick.
Labels:
ADHD,
behaviors,
Brain injury,
children,
FASD,
fetal alcohol,
RAD
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