Thursday, April 19, 2012

Seven Easy Steps to Teach a Child with Fetal Alcohol Spectrum Disorders


What Mak taught me to teach persons with learning differences new skills.
Give permission to be frustrated. This is actually a pre-step and don't forget at each "new" step to say "Tell me if you get frustrated and we can stop." Remember, when you are guiding a person with brain injury to learn something new - respecting the personhood it very important! Keep instruction statements and steps to complete less than 12 words! If learning is not taking place break the task down into smaller steps.

  1. REVIEW - CHECK IT OUT!  We review the options of how to teach so we have a backup plan. We make the initial calls, visit the site and discover the details. This helps avoid failure in the first teaching/learning session. 
  2. WATCH "Watch me do this." We tell Liz what she is going to learn and take her through the process to accomplish the task. In this first step she is the observant participant with us – we do not require learning. She asks questions and we answer as simply as we can. We may show, guide, read, point out, role model, dramatize, and laugh alot! We make this fun. We also may share some of the funny things that happened to us when we tried this the first time.
  3. WATCH – EXPERIENCE "Watch me and you can help." We repeat the experience with her contributing pieces of the learned task. We involve her in the task in fun ways. We allow her to help us in the final pieces - by allowing a person to complete the final step the person is successful in the process. 
  4. EXPERIENCE – WATCH "This time you can try it." We repeat the experience with her contributing more pieces of the learned task and we begin to step away. We work together and this step may need to be repeated a number of time until person is secure and has the ah ha!
  5. EXPERIENCE – SHOW  "Wow, you can do it! Show me how." She tells me what to do and I laugh and become a partner in “her” learning.
  6. SHOW – LET GO  "You can do it!. I don't think you will need me much." She shows me as I watch and then let go. This is her time to do it herself without help but encouragement. Provide time to think and move to the next step.
  7. I CAN DO IT!  She skillfully and a bit fearfully completes the process, while I sit in a parking lot waiting or stay close to the phone to guide. ‘I Can’, can take a while and when learning is mastered we move on to the Next Step in our adult journey.
  8. ”I DID IT!” At this point you may need to return to teaching and support if the person has a day that is very stressful, they are hungry, sick, cold, hot, tired, on new medication. If this learning experience needs to be repeated I recommend you go back to Step 3 and have a good time together. "Let's work together today, I like working with you."
Remember, it takes 8 healthy inputs to receive 1 healthy OUTPUT – most often we miss important steps in the teaching and learning becomes fraught with missing pieces and filled with frustration.

Friday, April 6, 2012

Chancer is a nominee for the 2012 American Humane Association Hero Dog Awards™!


Here's an easy way to help build public awareness about fetal alcohol spectrum disorders.


The icon is this
 little blue box next to
the url listed to the right.

TO MAKE VOTING EACH DAY EASY...

Click on the HERO ICON in your URL
http://www.herodogawards.org/vote/?nominee=82443978


  1. Drag icon to your toolbar
  2. This will create a favorite.
  3. Click favorite to vote each day.
  4. When contest voting is over - Delete the favorite.

Wednesday, March 28, 2012

OUR FASCINATING JOURNEY NOW AVAILABLE

Our FAScinating Journey

Keys to Brain Potential Along the Path of Prenatal Brain Injury (3rd Edition)


by Jodee Kulp


Special thank you to the following people who have contributed their knowledge and lives to living, loving and laughing alongside people with FASD


Toni Hager NDS, Teresa Kellerman, Deb Evensen, Liz Kulp, Jan Lutke, Kari Fletcher, Cathy Bruer Thompson, Susan Rose, Victoria Deasy 


Our FAScinating Journey will introduce readers to another winding path in working with prenatally exposed children. Jodee illuminates this path with lights that shine the hope of possibilities for these special kids. On your journey through these pages you will: * Discover creative approaches in reaching and loving children with attachment issues. * Understand how alcohol affects the growing brains of children. * Become familiar with brain terminology. * Uncover ideas to help a child nutritionally. * Wade through school and behavior issues with tears, laughter and strategies you may not have tried. * Meet professionals who have helped the Kulp family help Liz grow. * Loose yourself in a myriad of ideas within the appendix. * Smile as you get to know Liz, a very real teen who is determined to be the best she can be inspite of FASD. Our FAScinating Journey: The Best We Can Be, Keys to Brain Potential Along the Path of Prenatal Brain Injury is written for families, professionals and the community. It's goal is to open the door to possibilities for our citizens who have sustained brain injury due to toxins in the womb. While this is Liz Kulp's story, our hope is to open doors for you and your child. We want to help your family become strong and united rather the divided and fall. We want to provide your child "a chance to grow!"

What's new in this 3rd Edition
  • Updated research, websites and references 
  • Liz has added eight of her twelve Braided Cord Strategies 
  • New selections from Kari Fletcher, Victoria Deasy, Diane Black, Deb Evensen, Jan Lutke
  • S.M.A.R.T. Early Childhood executive summary report. 


Wednesday, February 29, 2012

Fetal Alcohol Spectrum Disorder Service Dog Featured in New York Times



The New York Times Magazine

Sunday, February 5, 2012 Full Feature Story:

WONDER DOG

A Golden Retriever Was the Only Thing That Could Reach a Raging, Disconnected Boy


The Winokurs of Roswell, Georgia, had no idea of the journey that was in store for them when they adopted son Iyal and daughter Morasha, two seemingly healthy babies from Russia in 1999. Iyal’s eventual diagnosis at age four with fetal alcohol syndrome (FAS) the most severe expression of (FASD), a debilitating and life-long birth defect, forever changed their lives.
Atlanta journalist and award-winning author Melissa Fay Greene eloquently captures this family’s challenges and triumphs and the hope they found in an unlikely source—an 80 pound golden retriever named Chancer, the subject of Donnie Kanter Winokur’s new book, Nuzzle – love between a boy and his service dog–in her February 5 feature story, “Wonder Dog.”
The importance the story clearly resonates with readers around the world. The article has been live on the New York Times website for just five days, and it is the NUMBER ONE emailed story, the NUMBER ONE most-searched story and among the Top 10 most-viewed stories on the site. Clearly, the Winokur family journey dealing with a child of fetal alcohol syndrome is one that touches people’s lives.

Friday, February 10, 2012

Honoring Congenital Heart Defect Awareness - FREE BOOKS


Three for FREE Kindle Books - ON AMAZON

From Midnight February 11-11:59 pm to February 15 In Honor of our Exceptional Children and Congenital Heart Defect Awareness - Three Mom's Choice Award Winning Books are yours for FREE

1. Tiny Titan - One Small Gift by Ann Yurcek (5 Star Dove Award)
2. Braided Cord - Tough Times In and Out by Liz Kulp
3. The Whitest Wall - by Jodee Kulp
Please pass this on - Get the Kindle app free if you want to read it on your PC, reader or phone

Jodee Kulp, Liz Kulp and Ann Yurcek

Friday, August 19, 2011

The Whitest Wall meets National Curriculum Standards



The high school version of The Whitest Wall just came to my office by UPS. A Gold Award winning novel by Mom's Choice it meets high school curriculum standards in the following areas while building awareness of Fetal Alcohol Spectrum Disoroders. Consider it for the high schools in your areas. Email jodeekulp@gmail.com if you are interested in getting this novel into your high school curriculum.

Click here to order High School sample

The Whitest Wall
NATIONAL CURRICULUM STANDARDS


ENGLISH STUDIES



  1. The Whitest Wall promotes an understanding of the diversity of the American English language in both a current and historic sense with the use of patterns and dialect.


  2. The reader will cross cultures, ethnic groups, geographic regions and social roles to acquire new information for a better response to the needs and demands of society and the workplace.


  3. The reader will draw on personal experience to reflect on the understanding of the other citizens. They will be challenged by portions of the texts with word meanings and misunderstandings.

SOCIAL STUDIES




  1. Written for the development of a democratic citizenry to enable learners to engage in civic discourse and problem-solving, and to take informed civic action.


  2. The Whitest Wall can provide classroom discourse in the seven of ten theme areas:
    i) Culture
    ii) Time, continuity and change
    iii) People, places and environments
    iv) Individual development and identity
    v) Individuals, groups and institutions
    vi) Power, authority and governance
    vii) Global connections
    viii) Civic ideals and practice

HEALTH STUDIES




  1. Students analyze the influence of culture, media, technology and other factors on health.


  2. Students demonstrate understanding of health-enhancing behaviors, reduce health risks, use decision-making skills to enhance health and advocate for personal, family and community health.


  3. The Whitest Wall provides for opens discussion in content areas addressed by the US Center of Disease Control
    i) behaviors that result in intentional or unintentional injury
    ii) alcohol and other drug use
    iii) sexual behaviors
    iv) prevention of fetal alcohol spectrum disorders