Showing posts with label pregnancy. Show all posts
Showing posts with label pregnancy. Show all posts

Saturday, August 17, 2013

I can't believe it! You CAN drink alcohol when you are pregnant?

"Wow, oh wow. What can I even say? As adults we live as active of life and more independently than many persons who share our secret. Oh and we've been down the path of experiences no parent wishes for their child. I know what it feels like to have your book published and I am sure Emily Oster is excited. "Expecting Better: Why the Conventional Pregnancy Wisdom is Wrong—and What You Really Need to Know," by Emily Oster to be published Aug. 20 by the Penguin Press.  

Please read her book and then read mine before you make a decision to celebrate 0-4-9. It is such a short time of your whole life!

Dear Emily,

My name is Liz Kulp, any woman who is able to have a baby is very blessed. My birth mother was blessed to have me. She was a single mom, who drank wine and as far as I know - not by the gallon. But her life choices became my life. And my life is not the life you want for any of those future beautiful children like Penelope. There are a lot of things that can create the secret most people don't see when they meet me. They don't see that I understand every third or fourth word of a conversation. People think I know what they are saying. Some of it I do know and some I don't, then later I have to figure it all out on my own—that is overwhelming. Perhaps you say I should just say I don't understand. Well, Emily I have tried that, and what happens when I do, people began to use more words and they add to my confusion. Or they slow down their speech as if I have no brain and treat me like a child.  If I trust you, I will tell you I need more information, but I have found over the years that people with high intelligence get frustrated when they try to help me so I remain quiet. Note, I am not an unintelligent person. I am differently intelligent. In fact, some of the ways I see the world may actually be a gift to you. 

My life did not begin as a child who people thought would struggle with brain and metabolic injury and that is a problem that will haunt me for the rest of my life because the therapies that could have been in place when I was in preschool and an infant did not happen. As I said, my differences are a secret, and unless you REALLY know what to look for you will not see what I deal with everyday.
In fact, my grandmother, Dr. Carrie Kulp, a professor at West Chester believed I was gifted and so did my great-grandmother who graduated from college as a child developmental professional. That was because the parts of my brain that work very well are in concrete thinking.

Emily, I am a woman, and like you I love and grow and learn new things each day. But, unlike you my life experiences because of my mother's choice have been hindered. I won't go into the details - they exist in all my books. And why would I want to write such books. Because I know how hard life is for people like me and their families. I know how hidden our secret is. I know that unless you love a person like me and truly get to know us and our families you remain hidden from our reality. I have chosen not to follow my mother's path. I have been sober four years and if I am blessed with a pregnancy when I am ready to parent a child in a healthy way - I will give that child the best I have to give from it's beginning. I know the cost. I am the cost.


Click Sam and my picture to
find my book on Amazon
When I was two I spoke in paragraphs and knew 60 breeds of dogs — no one suspected. The clues were all there and they who needed to understand my needs did not see.

Liz Kulp (transcribed from conversation)


I like Ed Riley's statement to the Wall Street Journal

I find it amazing that the author wants to take on the responsibility of assuring so many women that it is ok to have “a glass of wine or so a day” while pregnant. She readily acknowledges that “all drinking isn't created equal,” but fails to recognize that all women are not created equal. There are many factors that go into determining whether consumption of alcohol during pregnancy might have an impact on the developing fetus, besides the timing, amount, and pattern of consumption. Additional factors that influence the outcome relate to nutrition, age and one’s genetics. A recent study out of England (Lewis et al, 2012) on over 4000 children found that several genetic variants controlling alcohol metabolism were strongly related to lower IQ at age 8. Importantly, the effect on IQ was seen in the offspring of mothers who were consuming 1-6 units of alcohol per week. If you had these genetic variants, but abstained during pregnancy your child did not show an effect on IQ. A unit is probably a little less than the standard American drink, which brings up another issue. Just how big is that one or so glasses a day you are recommending? A standard drink of wine is 5 oz, but over-pouring is the norm thus underestimating the volume consumed. I for one believe that most women are probably ok with a glass of wine now and then during pregnancy, but I just can’t tell who those women are. Individual genetics, drinking habits, and other contributing factors limit the ability of science to make the assurances that Dr. Oster appears willing to endorse.

To find the Emily Oster, the author and her new book on Facebook at fb.me/profemilyoster

To find my books visit www.fasdbookstore.com

Wednesday, June 20, 2012

Lifestyle During Pregnancy Results are in for 5 year olds... WHAT HAPPENS WHEN THEY ARE 10



Children at age five, who are affected by prenatal exposure to alcohol are still in concrete operations. At that time in the life of my family members, our children were precocious, fun-loving, creative and energetic despite the fact that one child dealt with huge attachment and sensory issues which overshadowed her reality until she was over twelve years old and another had suffered two strokes before age eight months. 

If IQ testing is given during early elementary years the results will be based on concrete operations. When IQ testing is given after age ten, abstract thinking begins playing a larger part in the scoring criteria. Professionals missed her diagnosis until she was two years passed the time of entry into abstract thinking and if we had known earlier we could have supported skill building in additional ways. From ages 6 to 17 our daughter lost 30 IQ points - she was not growing less intelligent, she was unable to gain abstraction. Even as an adult, her world remains in concrete operations

At age ten, (fourth grade is often the time) life and education moves into abstraction. It is during this phase of childhood we see increased raging and/or shut down as they try to navigate a world quickly becoming unreachable. Fetal alcohol spectrum disorders (FASD) is a lifetime choice you do not have to make to create additional challenges for the persons who must live with it. For researchers to make a statement with preschoolers without the additional data that may be forthcoming at ages 10, 15, 20, and 25 is unfair to the hundreds of thousands of people living with this hidden disability. Let's hope the media does not spin this out of control - let's hope we continue to stand for do no harm. 

May the best continue to be our best...
Jodee Kulp


Please read the letter I received from CDC.

Dear Colleagues,

As you recall, in October 2011, the first paper from the Lifestyle During Pregnancy Study, “Low to moderate alcohol intake during pregnancy and risk of psychomotor deficits,”  was released in Alcoholism: Clinical and Experimental Research (ACER). This paper was the first to be published on the findings from the Lifestyle Study, designed to examine alcohol use and neurobehavioral effects in children (sampled from the Danish National Birth Cohort and funded by CDC and the Danish Research Council). Although the first paper examined motor function in five-year-old children whose mothers reported drinking low to moderate amounts of alcohol during pregnancy and found no effect, our message continues to be that women should refrain from drinking alcohol during pregnancy.

Today, five additional papers from the Lifestyle During Pregnancy Study were released electronically in BJOG: An International Journal of Obstetrics and GynaecologyFindings from these analyses again suggest no serious effects on three specific neurodevelopmental functions in five-year-old children whose mothers drank low to moderate amounts of alcohol in pregnancy. However, because no safe level of alcohol during pregnancy has been established and alcohol is known to cause birth defects and developmental disabilities as well as other adverse pregnancy outcomes, advice continues to be that women should refrain from drinking alcohol during pregnancy. We know that FASDs are 100% preventable if alcohol is not consumed during pregnancy, so why take the risk?

We have listed the citations and abstracts below and encourage you to read the articles. We are also adding a “Key Findings” summary to our website which discusses the findings. You will be able to find this shortly on our FASD home page at www.cdc.gov/fasd.

Please let us know if you have questions or would like to discuss further. 

Thank you! 
US Center for Disease Control

References/Abstracts for BJOG articles (2012):
Falgreen Eriksen H-L, Mortensen EL, Kilburn T, Underbjerg M, Bertrand J, Støvring H, Wimberley T, Grove J, Kesmodel US. The effects of low to moderate prenatal alcohol exposure in early pregnancy on IQ in 5- year-old children. BJOG 2012; DOI: 10.1111/j.1471-0528.2012.03394.x
Kesmodel US, Falgreen Eriksen H-L, Underbjerg M, Kilburn TR, Støvring H, Wimberley T, Mortensen EL. The effect of alcohol binge drinking in early pregnancy on general intelligence in children. BJOG 2012; DOI: 10.1111/j.1471-0528.2012.03395.x  
Underbjerg M, Kesmodel US, Landrø NI, Bakketeig L, Grove J, Wimberley T, Kilburn TR, Sværke C, Thorsen P, Mortensen EL. The effects of low to moderate alcohol consumption and binge drinking in early pregnancy on selective and sustained attention in 5-year-old children. BJOG 2012; DOI: 10.1111/j.1471-0528.2012.03396.x
Skogerbø Å, Kesmodel US, Wimberley T, Støvring H, Bertrand J, Landrø NI, Mortensen EL. The effects of low to moderate alcohol consumption and binge drinking in early pregnancy on executive function in 5-year-old children. BJOG 2012; DOI 10.1111/j.1471-0528.2012.03397.x
Kesmodel US, Bertrand J, Støvring H, Skarpness B, Denny CH, Mortensen EL, and the Lifestyle During Pregnancy Study Group.* The effect of different alcohol drinking patterns in early to mid pregnancy on the child’s intelligence, attention, and executive function. BJOG 2012; DOI: 10.1111/j.1471-0528.2012.03393.x

*The Lifestyle During Pregnancy Study Group
Bakketeig LS, Boyle CA, Cogswell ME, Falgreen Eriksen H-L, Grove J, Kilburn T, Landrø NI, Skogerbø Å, Underbjerg M, Wimberley T