Wednesday, January 9, 2013

Free Tickets for Minneapolis Healthy Life Expo This Weekend


Adults living with the challenges of fetal alcohol spectrum disorder have joined forces to speak out and share with the public!

Come see our booth this weekend for FREE!


We need volunteers for a PREGNANCY PAUSE!!!!

JAN 12-13, 2013 ~ Healthy LIFE EXPO™
Saturday 10am to 5pm and Sunday 10am to 5pm
Minneapolis Convention Center Ballroom - 1302 2nd St - Minneapolis, MN - 55403

Nutrition, Fitness, and Longevity - It's all here! Explore up to 200 exhibitors offering everything for health, balance and success in all areas of life. 3 - Stages of on-going speaker presentations, demonstrations and live entertainment. Product sampling, hourly drawings and free health information. The Smart place to get the free tips information to start living a healthier life. See the latest in men’s & women’s health, weight loss, living well, health services, and much more! Seminars, product demonstrations, entertainment, and great shopping all weekend long!

This will be the FIRST time they have featured FASD and it will be the kick off for our ADULTS living with these life challenges to reach out to the public!!!! We're making noise! Want to volunteer at our booth - COME JOIN US!
         
Admission $6 or PRINT FREE TICKETS AND COME SEE OUR BOOTH: http://www.mediamaxevents.com/vip

Monday, December 24, 2012

And so this is Christmas living with the challenges as a adult with fetal alcohol

And so this is Christmas:

We're down to the home stretch now, only 2 more sleeps to Christmas. 


My son has gone to spend the holiday with his mom, because as every body knows - nobody NOBODY does Christmas like MOM! :) That leaves me and two cats to have fun ourselves. And we do!
They get presents and some special food too!

There are no decorations at my home, no sounds of Christmas choirs or jingle bells. While there are a few paintings and prints in the living room, my own room is bare white walls, save for one small picture of my daughter. I hide the modems because the blinking lights tend to throw me off after a while. And between the computer, the cable box and the telephone we have a whole lot of blinking lights all over the place. So, no need for Christmas lights as far as I'm concerned! LOL! It sounds bleak to some, but to those of us living with FASD it feels safe and comfortable. There are times when we just need a break from all the lights and sounds and my home is where I can do this.

Being a safe place for me sometimes means the exact opposite to my apartment though... it's the place I can let down my guard and show my frustration at the world, or myself in that world. It's where I giggle like a little kid while wrapped up in a snuggly watching cartoons, or at this time of year It's A Wonderful Life. It's the place I can stop and try to figure out the world outside. It's the place I melt down. :( It's also the place I build myself back up again. :)

Through the years I've had to learn to become quite a handy man, thanks to this "thing" I've fought all my life. I can mend a door, change a window, patch a hole and paint like there's no tomorrow. Sometimes though, I don't repair these things... I leave them as a reminder of what can come to pass. People see this damage and go "oh that's terrible" and all that... but what they don't know is that same damage is forever imprinted on my soul. I'm not proud of that damage, it's not something I ever wanted to be responsible for... no it is a shame I have to bear. And not forget what can happen IF I allow myself to get into that frame of mind. Understanding FASD has made me understand just how very important self soothing is to an adult like me. There is no one else to do it, and I can't be melting down or shooting off every time some thing does not go to my liking. Having a person I can trust as my external brain helps me understand many things, but some times I am the only one who can prevent or at least lessen these things from happening. And that is just how it should be. If I want to be independent then I have no choice but to accept and deal with my own actions. "I am the Captain of my fate; I am the Master of my Soul". Understanding that it is because of the FASD that I have a hard time regulating myself emotionally has given me the tools to "fight the beast". Knowing and understanding has made all the difference.

I'm so much better than I used to be in this area, but sometimes I still kick a door jamb, or suddenly let loose with some loud expletive... but it is getting better and better. I never thought there was any way to fight this, but I am learning that knowledge really IS power. I CAN beat this thing and I will.
Taking care of myself... eating, sleeping and that sort of thing and a good amount of physical exercise also help to no end.

It is reactive anger and I work at stopping the reaction that causes it to spill out into the world. No one can see my confusion and pain, nor can they see my frustration. I get frustrated that I feel like this, and that leads to added frustration because I feel frustrated for feeling frustrated. Make sense? No... but that's what it's like... sometimes it's a loop I get stuck in. Fun, huh?

So, this Christmas don't forget how all these sensations and emotions can give us need for some quiet time, for a place we can just relax for a bit. I have to hand it to a great friend and her family... they invite me for Christmas and don't bat an eye if I suddenly have to go outside for a walk, or stand instead of sit, or walk from room to room... or just sit quietly. I really enjoy being able to share the festive season with them all.

Everyone I hope you all have a Wonderful Christmas time... no matter your beliefs or values, we could use more of this "Peace on Earth" stuff!

And that is my wish for each and every one of you this year-

****************P E A C E*****************

:) RJ - "Flying with Broken Wings" reprinted with permission from Facebook

We are excited to include RJ in our website of experts after the first of the year 
www.braidedcord.net

Saturday, December 22, 2012

FREE download for the holidays if you're out of money - give freely

 Better Endings New Beginnings Offers The Whitest Wall by Jodee Kulp

FREE FOR CHRISTMAS 

Regular $9.99 on Kindle

Looking for a gift and no money left...FREE kindle download from Dec 22-26

"Winner 2012 USA Books Award" Best Young Adult Fiction
"Winner Mom's Choice Gold Award" Best Young Adult Fiction
"Winner Mom's Choice Gold Award" Best Adult Fiction

"This book should be read if every high school classroom in America!"

In a season of hurting, understanding differences in each other may be the bridge of healing and stopping future violence.


BOOK REVIEW
“Kulp has created a new third-person Catcher in the Rye”
– Lyelle Palmer, Ph.D., Special Education Professor Emeritus, Winona State University, Minnesota.

“Jodee Kulp’s beautifully drawn characters will touch your heart, mind and soul.”
– bestselling author, Diane Chamberlain, Before The Storm

The Whitest Wall has the ability to change the perception of how we view others, treat others and understand others. Learning how to deal with
brain injuries, neurodevelopmental therapies and living with a neurologic brain condition, is life threatening for many. Without the proper support, understanding or human connection, these injured beings fall from everyday life. Sometimes these injuries are not always heard or seen and people live in a silent world of pain. Kulp’s novel, "The Whitest Wall", opens the door to the silence and screams to promote insight.

Kulp writes her novel with a sensitivity that speaks to her personal experiences with Fetal Alcohol Spectrum Disorders (FASDs). She moves her characters freely and easily through her story giving them color and value so that readers are able to connect with them. This connection is what she uses as her learning tool. Her boomerang effect is that she teaches others about the nature of living with FASDs—she educates her readers on living with a neurological brain disorder.

"The Whitest Wall", is meant to inspire conversation about FASDs. It is a novel that uses fiction as a vehicle for public education. Kulp interweaves her characters, she builds upon truth, sprinkles on fright and reality for flavor and delivers a fascinating story that will touch the hearts of everyone that reads "The Whitest Wall".

— Sara Hassler, Midwest Book Review

Wednesday, December 5, 2012

FASD Think Tank - Premiers Blog with Holiday Strategies.


Enjoy our first FASD Think Tank article
  


to help families 
live, laugh and love
 throughout the holidays. 
May your celebrations be filled 
with love and peace. 

Jodee, Liz and Karl Kulp

Monday, November 26, 2012

Dollar Store Delights in Holiday Savings

Xmas By the case can make a difference.

If you have a company party, association or church event - consider saving money by buying products from Dollar Tree by the case.

Check out their online store --- to save running into crowds with children that get overwhelmed.

Don't forget to take time for yourselves. Capture memory moments with the little ones. They grow too fast and even though it behavior may seem impossible, someday you will look back and chuckle.

Jodee and Liz Kulp




Friday, November 16, 2012

Micro publisher scores four national books awards on Fetal Alcohol

Today was one of those wild even though you have adults with FASD day... appointments and work and all those other things that play into it... At the neurologist/physical therapist I was reading the newspaper - something I rarely do and they were announcing all the Minnesota Book winners and how powerful of writing state we have and how each of the houses won in their excellence and I thought I wish we could do that... and I read.... what good authors we have here and.... Oh I sure wish we could make some inroads... feels like we have icy roads... more helter-skelter of a day... and more demands and spinning out... how come we can't seem to make progress with FASD... this day feels like a tornado in glue....

WELL GUESS WHAT - this little tiny itsy bitsy micro publishers with a niche in fetal alcohol spectrum disorders came home to ---

1. GOLD! Mom's Choice - Parenting Books – Special & Exceptional Needs
Our FAScinating Journey - Keys To Brain Potential Along the Path of Prenatal Brain Injury (3rd Revisions) from by Jodee Kulp

2. WINNER! The 2012 USA Best Book Awards! - Young Adult - Fiction
The Whitest Wall by Jodee Kulp

3. FINALIST! The 2012 USA Best Book Awards! - Animals/Novelty
Nuzzle - Love Between a Boy and His Service Dog by Donnie Winokur

4. FINALIST! The 2012 USA Best Book Awards! - Health: Addiction & Recovery
Braided Cord - Tough Times In and Out by Liz Kulp

Now if only someone could help me get the word out in a MUCH MUCH MUCH bigger way

... I am humbled

Monday, November 5, 2012

A movie? Broken hearts, threads of opportunity, and fur-covered love


Fur-covered love inspires and encourages; will be a movie! Who’s gonna play me?

Friends from Roswell who faced insurmountable odds were blessed with a miracle service dog. First he writes a book; now he stars in a movie! Here’s the story of a service dog whose narrative is being made into a movie – a movie about a boy who lives with fetal alcohol syndrome and a Golden Retriever who gets another chance at love, with a family desperate for HIS special kind of help.

He got a second chance at love as a service dog for a family desperate for help. Now their story is being made into a MOVIE!

Too cool: 
A service dog brings calm to a family torn apart by fetal alcohol syndrome. Writes book about it; movie’s in the works! Think he knows?

This is a story of broken hearts, Titanic alcohol damage, and second chances. It is a story I have been blessed to help unfold over the last six years; a story that joyfully, and brilliantly, is becoming very well known, despite its being started by epic unraveling thousands of miles away.

A little background: an eternal optimistic opportunist, I see 50 ways that something will work where most sane folks only see downside. Where others see a single thread, I see entire tapestries. It is a blessing and a curse.

I needed a thread or two back in 2006 when I was working on a fundraising race to raise awareness for fetal alcohol spectrum disorders (FASDs), an umbrella term used to describe the range of effects that can occur to an individual whose mother consumed alcohol while pregnant. The most severe form of FASD is called fetal alcohol syndrome (FAS). FASD is not “a warm and fuzzy”; people do not get all whoopty-do about it. Most would rather NEVER hear about it, much less tell our sisters they can’t have a glass of wine for nine months. So when I heard about a particularly enthusiastic participant in the race, I was eager to meet her.

So, I met Donnie Winokur, a wisp of a woman with intense brown eyes and wildcat mother energy; that “I-will-fight-to- the-death-for-my-children-and-kick-your-butt-from-the-grave” urgency that I, as a long-time single mom, had run on for years.

Donnie’s urgency was about learning as much as she could, and connecting with as many people as possible, to figure out what to do for a precious little boy who was in a world of hurt, hurt that was hurting everyone in his world.

To purchase Nuzzle
visit www.thechancerchronicles.com 
The little boy was her son, a dream-come-true who’d been adopted, like his sister, from an orphanage in Russia, on what was a kind of second honeymoon for Donnie and her husband, Rabbi Harvey Winokur. “We didn’t try to get pregnant for long, opting instead, since we were older and this was the second marriage for both of us, to start the adoption process not long after we got married,” she said.

To cut to the chase here, Donnie and Harvey’s son and daughter, adopted in Russia and brought home to Roswell, GA in 1999, made them an instant family. The daughter developed beautifully, and today, at 14, is, physically and intellectually so much like her adoptive mother it is as though their souls were roommates in heaven for a million years before they were both made human.

The dream-come-true story with the little boy, however, started crumbling about the time he turned three, when epic meltdowns, mood swings, and rages grew with intensity as the little boy grew in size and strength.

After many consults with many doctors, the truth unraveled in the form of a “broken” umbilical cord. You see, the boy’s Russian birth mother might have been an alcoholic. Or not. Or she might not have known she was pregnant when she drank alcohol. Whatever the case, she’d had enough to drink at some point during her pregnancy with this precious child, that his brain had been hurt badly. Very badly. The very cord that gave him life also delivered deathly alcohol to his developing brain, affecting, in particular, the parts of his brain that regulate mood, emotions, memory, and the ability to communicate, discern, and deal with “no.”

I met a desperate Donnie Winokur a couple of years into her sometimes frantic search to learn about her son’s FAS, and to find anyone and everyone who might be able to help keep this family, knit together from oceans apart, from falling apart.

She was an enthusiastic volunteer. And opportunist that I was, I saw in her pain - a face for this cause.  She became, once some trust was established, a willing accomplice. She, too, saw tapestries where others saw threads.

I asked for an interview. She let me write her story, using her talents as a journalist to help edit it, and her wildcat mom energy to be sure I told it tenderly.

I asked to feature her family in a video. She had a persuasive dialogue with the reluctant rabbi, who ultimately let us film in the synagogue.

I asked her to be on a fundraising committee. She did it.

I asked her to give me input on a book I was writing about stopping the cycles of addiction and abuse, my way of using my pain to help myself and others.  We cried. We laughed. Our friendship deepened.

I asked if I could write a fundraising letter about her story. We made money on the letter and gathered new advocates for our cause.

She told me she wanted to get a dog to help her son, a dog that would be the first service dog ever to help a child with FAS by sensing an immanent outburst and using its love to help calm the child in ways no human can. I told her I thought it was a great idea. She told me her husband was dead-set against it. I told her, from experience, that mothers do rabies-crazy things because we are so in love with our children, and to listen to her gut.

She and her precious father and children brought home fur-covered love – a rescued golden retriever named “Chancer,” because hers was his second family; his second chance at love – that helped her son and became the rabbi’s best friend.

We did another video. The CDC did a video about her family and their experience with FASD in hopes of raising awareness of the fact there is no safe amount of alcohol, or safe time to drink if you are pregnant or could be pregnant.

We had awareness-building and fundraising schemes, dreams, and roadblocks that, as we climbed over them, made us stronger. And a little tired. After all, we’d hit our 50s together.

She was working on three books and we were both run ragged by children and traffic and board meetings and life and events and she decided to put her focus into the books. We stayed in touch, with emails and phone calls and rushed lunches or coffees and even a rare girls’ night out, just two moms and a hot dog.

And now, six years from our first meeting, her story has been told in an incredible award-winning book by her daughter. And in a second book, also published by Better Endings New Beginnings, that has garnered international awards and is the story of, and “written by,” the dog. And now in an epic feature spread in nothing less than the Sunday’s New York Times Magazine(2.5.12), written by a best-selling author who has woven this story and all its intricacies and miracles so beautifully, that I firmly believe there is a thread-for-thread matching tapestry of it hanging in heaven.

I invite you to get a second cup of coffee or tea and read this story (link below). Savor every word of it because you will want to read more. And more. And you will want, I believe, to see it told on a big screen. I know I do.  

Donnie do what she is so very, very good at doing: making sense of her family’s pain by using her experience, strength, and unfailing optimism to help others. 

UPDATE AS OF 11.5.12 – Chancer’s story WILL become a movie! It is being written by Writer/Co-Producer Karen Hall, who’s written for some of the most well-known TV shows of the last 30 years and the legendary movie “The Betty Ford Story”, and brought to the screen by Emmy Award winning director Martha Cotton .  Dreams are coming true. I am just wondering who’ll play ME in the movie. J



http://www.nytimes.com/2012/02/05/magazine/wonder-dog.html?pagewanted=all Wonder Dog - A golden retriever was the only thing that could reach a raging, disconnected boy. - by Melissa Fay Greene
  
http://www.thechancerchronicles.com/invisible.html - My Invisible World - life with my brother, his disability and his service dog by Morasha Winokur

http://www.thechancerchronicles.com/nuzzle.html -  Nuzzle –love between a boy and his service dog by Donnie Winokur

http://www.thechancerchronicles.com/index.html - Website with links to other publications, information, and opportunities about Donnie Winokur, her family, and Chancer, the "wonder dog."


Carey Sipp's first book, The TurnAround Mom – How an Abuse and Addiction Survivor Stopped the Toxic Cycle for Her Family, and How You Can, Too, guides fellow “children of chaos” to create the kind of sane and loving home life that helps prevent next-generation addiction and abuse. Her book is available at Amazon.com http://www.amazon.com/TurnAround-Mom-Addiction-Survivor-Family--/dp/0757305962/ref=sr_1_1?ie=UTF8&qid=1317756315&sr=8-1

  
Used with permission of  ©2012 ShareWIK Media Group, LLC