Monday, July 30, 2012

#41 Days To FASDay - Gear Up - Recap Ideas


Make a social difference that will impact millions -
help support friends and family members who are pregnant to help
"Build Better Baby Brains" for the future.

September 9

Read Book One before
Book Two - Tiger Butterfly is
released in September 2012

Need gear for your event: 

7 FREE Themes to Build Your Event! 

Simply pick a theme and go - you can get shirts, mugs, stickers, buttons and if you don't see it let me know and I can make it available.
  1. Each One Reach One Campaign
  2. Be a Life Saver Million Mind March
  3. Raise the Standard - Building Better Baby Brains
  4. Think. before you drink. 
  5. Free Spirit
  6. Trail Markers
  7. Life Braids

Step up to raise the standard. FASD is 100% preventable and lasts a lifetime.

Consider reading "The Whitest Wall" to learn more about the realities of FASD. Book Two - Tiger Butterfly to be released September 9 - share with your friends. Winner Mom's Choice Gold Best Adult Fiction and Best Young Adult Fiction. High School Curriculum and Discussion available.


To learn more visit:
Million Mind March 09.09 Website

Follow SILENT VOICES
#60 Days of Ideas to Countdown to FASDay Celebrations


Let me know if you choose to do something and we will post it to our international site at http://www.fasday.com/


Sunday, July 29, 2012

#42 Days To FASDay - Meet Chancer Service Dog for FASD


Learn about service dogs for children with FASD - Meet Chancer the worlds first certified FASD service dog. 

We want to thank Rabbi Harvey and Donnie Kanter Winokur and their children for speaking out boldly to build awareness of FASD. Their dog Chancer (www.thechancerchronicles.com) is the world's first certified service dog for FASD and other wonderful fur partners have been following in his paw steps. Their materials have provided hope and love for many.

The Winokur family offers the following international and national award winning materials to help people understand and love persons with Fetal Alcohol Spectrum Disorders


  1. For Siblings of Children with FASD —My Invisible World - My Brother, His Disability and His Dog - by Morasha Winokur    Written by an eleven year old sibling about growing up along side a same age brother discovered at four to have FASD. The Winokur family shares their journey with a service dog for FASDs. Learn about what a canine service dog can do for families with children who have fetal alcohol spectrum disorder (FASD).
  2. A Delightful Story for Children ages 3+ - Nuzzle Love Between a Boy and His Service Dog - Audio Book - by Donnie Kanter Winokur - An audio book that warms the heart and builds understanding and a tender age for persons with FASD
  3. An Early Reader for Children ages 6-8 - Nuzzle Love Between a Boy and His Service Dog by Donnie Kanter Winokur - A gentle story and FREE Curriculum to build understanding and prevent bully





Online Manual - www.fasday.com
Seminar - Or try our easy, effective, exciting 1½ hour program that walks you
 through the morning of Sept.9: http://www.come-over.to/FASDAY/ABCDEFG/ 
(material from 2002 has excellent ideas)



Follow us through the next 60 days and plan your local or personal project to build awareness of fetal alcohol spectrum disorder - Each One Can Reach One!

Need family support visit www.toolboxparent.com
Need ideas for adults living with challenges of FASD visit www.braidedcord.net
Need information on fetal alcohol spectrum disorders visit www.betterendings.org
Interested in service dog for FASD visit www.thechancerchronicles.com

Saturday, July 28, 2012

#43 Days To FASDay - Write some letters





Write a Letter to the President or Your Country's Leader! Write to your mayor or the university president in your community

Write a Letter to the President
or Your Country's Leader!


This is a great summer family fun project...
Everyone can "make some noise" -
artwork, postcards and note cards are great from kids

Dear President Obama,
Let me tell you about fetal alcohol spectrum disorders or FASD,
.....go kids you can do it!!!

As part of International FASD Awareness Day,
please join us in this easy, free activity
to help raise awareness of FASD at the highest
levels of our government.

This idea originated with Tami Eller, a member of our local FASD Council.
Cheri Scott, FASD Family Support Project - Stone Soup
http://www.stonesoupgroup.org/

A knowledge of the path cannot be substituted for putting one foot in front of the other.
M.C. Richards

Dear President Obama...

Let me tell you about FASD...

International FASD Awareness Day Letter Writing Campaign.

Did you know that President Obama reads 10 letters each night written by everyday Americans? Imagine if every letter the President read was written by someone whose life is impacted by Fetal Alcohol Spectrum Disorders.

If everyone affected by FASD writes to the President prior to September 9th then the probability of him opening even one letter regarding FASD is incredible. The more letters, the higher the probability that all ten letters he reads will be written by those affected by FASD.
  • Are you a parent of a child with FASD?
  • Are you an adult with FASD?
  • Doesyour sibling have FASD?
  • Do you teach a child or an adult with FASD?
  • Are you a grandparent of a child with FASD?

For everyone person born affected by prenatal exposure to alcohol, everyone who loves that individual lives are also affected.

Join us in educating President Obama regarding the most prevalent of all birth defects: Fetal Alcohol Spectrum Disorders.

Join us in asking President Obama to ring a bell at 9:09 am on September 9 to recognize the importance of Nine Months of an Alcohol Free Pregnancy.

Starting the week of September 1 send a letter to President Obama telling him your story of how Fetal Alcohol Spectrum Disorders have affected yourself and those you love.

Send President Obama a letter to at:
President Obama
The White House
1600 Pennsylvania Ave NW
Washington, DC 20500

Must be mailed by August 17th!
OR
Send President Obama an email by filling out the form at:
http://www.whitehouse.gov/contact

Talking Points

The Facts:
  • Fetal alcohol exposure is an international and national crisis
  • Prenatal exposure to alcohol causes permanent brain damage
  • Prenatal exposure to alcohol is the leading cause of mental retardation
  • Fetal Alcohol Spectrum Disorders are 100% and easily preventable - simply no alcohol consumption during pregnancy
  • Fetal Alcohol Spectrum Disorders are a life long disability - from cradle to grave
  • More babies are born with Fetal Alcohol Spectrum Disorders than Autism Spectrum Disorders or Downs Syndrome
  • There is no safe amount of alcohol to drink during pregnancy
  • It is estimated that more than half of the prison population is affected by FASD
  • Prenatal exposure to alcohol costs the United States millions of dollars a year to provide services to individuals affected by a FASD
  • Early identification and intervention has huge impacts on the reduction of mental health concerns and behaviors resulting in legal intervention
  • Even with early identification and intervention, individuals with a FASD will need to lifelong supports
The Daily Realities of Living with Fetal Alcohol Spectrum Disorders
As a Parent:
  • Struggles with you have raising your child with FASD
  • Struggles you have explaining the invisible brain damage to others who deal with your child* Struggle finding appropriate services for your child
  • The lesson you have learned in your journey of raising a child affected by FASD
  • Your dreams for your child
As an Adult affected by FASD
  • Struggles you had to overcome in your lifetime
  • Strengths and talents you have
  • Accommodations that enable you to be successful
As a Profession working with individuals affected byFASD
  • What systematically is working for your clients
  • What systematically is not working for your clients
  • Struggles your clients face on a daily basis
  • Struggles you face on a daily basis in obtaining resources for your clients
  • What resources are necessary for your clients to be successful
What needs to happen
  • Proclamation by the President of the United States recognizing September 9th as International Fetal Alcohol Spectrum Disorders Awareness Day and the importance of abstaining from alcohol during pregnancy
  • Ask him to ring a bell at 9:09 am on September 9 in recognition of the individuals affected by FASD.
  • Diagnostic teams in all 50 states to facilitate and identify early diagnosis and intervention
  • More resources toward prevention and early intervention

Friday, July 27, 2012

#44 Days To FASDay - A FASWorld Fable


A FASWorld Fable

(To Share at Your FASDay Event from Bonnie and Teresa)


Once upon a time, not too very long ago, Beautiful Blue Butterfly Bonnie flew across the sunny skies from the Nippy North down to the Sultry South, where she met Tucson Turquoise Tutterfly Teresa. They spoke of their butterfly babies and tutterfly troubles, and wistfully whispered of all the other butterfly babies in the world who couldn't fly because their baby butterfly wings could not develop enough for them to fly freely on their own. The baby butterflies were always flying into terrible trouble.

! ! ! ! ! Tutterfly Teresa told Butterfly Bonnie all she knew about broken baby butterflies and their booze-battered brains.

Tiger Butterfly - Book Two
Bootleg Brothers Series
Available September 2013
Butterfly Bonnie shared all she knew about the overwhelming ! obstacles that must be overcome by all the mamas and the papas and their blessed baby butterflies.
Together the two shared their worthy wisdom. They lamented at length.
Butterfly Bonnie said, "Let's save all those baby butterflies!"
Tutterfly Teresa said, "How can we do that? We are only two burned out bedraggled butterflies. We cannot save the world."
To which BB replied, "Oh, we may not save the whole wacky world, but we can save some of the suffering souls trapped with their tattered and torn, worn wings. I have my Big Brainy Butterfly Brian to help me, and Cute Little Clutterfly Colette! And back home in the Nippy North is Nifty Nutterfly Nancy."
TT said, "Well then, that is five of us - ten wings in all. What kind of a flap can five FAS friends make?"
Butterfly Bonnie said, "Have you not heard?
'The oscillation of butterfly wings in Brazil may set off storms in Texas.' "
"Brazil?" exclaimed TT. "I know some terrific tot-tutors in Texas, but I don't know any butterflies in Brazil."
"Oh, but you will! You will! Brazil and beyond." Butterfly Bonnie continued to cheerfully chatter. "If we mobilize and motivate all the other butterflies in the world, just think what storms we could set off! Not just in Texas, but in Tucson and Toledo and Toronto and Everywhere that our butterflies beat their beautiful wings! Why, we might even move mighty mountains."
So Butterfly Bonnie flew back to the Nippy North and stirred up serious storms all over earth space.
And Tutterfly Teresa flew back to the internet and intermitently interrupted inertia all over cyberspace.
Before long there were hundreds of busy butterflies making wonderful waves of awareness, telling their true tales, procuring proper proclamations, mobilizing media, bringing bells a-ringing,
"Nine! Nine! Ninety-Nine!"

And so, air waves announced and reporters revered all the awesome events planned and produced proudly by those sixty successful blessed butterflies on that fine Fall day. Ripples reverberated across the peaceful planet, telling the truth about the broken baby butterflies. Beyond the barriers of ignorance and indifference, the message of mothers and fathers afar:
"Desist the destruction of the delicate development of those wee little wings of the babies we bear. Try not to trample those innocent individuals whose wings cannot wend their way so well. Listen and learn. Don't forget and regret. Beware and take care!'
And they did!

The moral of the story is this...
Never underestimate the power of the pen, the wonders of the web, and the beating of butterfly wings in the wind. Especially esteem the miracles of mothers and daddies who love their little lassies and laddies above all on the earth in this fabulous family called FASWORLD.
And to think it all began with one Beautiful Blue Butterfly... Bonnie! Read thank you messages sent to Butterfly Bonnie Buxton here.

Thursday, July 26, 2012

#45 Days To FASDay - Historical memories





From the first FASDay Celebration on 9.9.99 - Ideas you can still use!

Here are some events as FAS Day #1 moved around the world - feel free to borrow ideas. Special thank you to Bonnie Buxton, Bruce Richie and Teresa Kellerman - if three people were able to get this much movement and awareness - think what all of us together can do today!



  1. Aukland, NZ: Breakfast for FAS supporters, Minute of Reflection bells ringing in nearby Mt. Albert Methodist Church. Events also held in Wellington, Hamilton and Invercargill.
  2. Cape Town, South Africa: program outside historic 37-bell War Memorial Carillon, which rang when Nelson Mandela was released from prison.
  3. Kiel, Berlin, Flensburg and Hamburg, Germany: posters, buttons, info stand in town centre; information evening for Social Services, teachers, physicians; famous restaurant giving free nonalcoholic drinks to pregnant women all day long.
  4. Iqualuit, Nunavut, Canada: events included church bells, art exhibit featuring soapstone carving donated by famous artist Ookpik Pitseolak, showing drinking mother with baby in Aamouti@ (parka hood.)
  5. Toronto, ON, Canada: program inside Metropolitan United Church included international lullabies on church carillon, native drum singer/elder offering prayer in English and Ojibwa, keynote address by Dr. Carolyn Bennett, federal Member of Parliament.
  6. Sioux Lookout, ON, Canada: program in local park featuring sharing circle, prayer by First Nations elder, Minute of Reflection with wind chimes and rain sticks.
  7. Kenora, Keewatin, Jaffrey Melick, ON, Canada: poster distribution to doctors= offices, three-level curriculum offered to teachers.
  8. Toledo, OH, U.S.A.: Day-long activities included hot-air balloon with words on it, AFAS: THE HIDDEN PLAGUE@ and matching yellow AHidden Plague@ T-shirts.
  9. Minneapolis, MN, U.S.A.: 9:09 a.m. bells included two carillons, City Hall, three cathedrals, two other churches, followed by large rally and speeches outside State Courthouse.
  10. San Antonio, TX, U.S.A.: Day-long information program for teachers and others concerned with FAS, included presentations from FAS Day volunteers, Claudia Barker, and Dr. Bob Clayton.
  11. Austin, TX, U.S.A.: program built around the 56-bell Kniker Carillon at University of Texas.
  12. Tucson, AZ, U.S.A.: 9:09 a.m. bells at St. Augustine Cathedral; outdoor program featuring two young people who struggle daily with FAS.
  13. Lakeland, AB, Canada: five communities participated in day-long events, including poster blitz, mall display, bars offering Apregnant pause@ nonalcoholic drinks for pregnant women, church bells ringing, junior high school students making FAS Knots, proclamations in all five communities.
  14. Red Deer, AB, Canada: all-day mall displays, use of FAS brochures as place-mats in local restaurants.
  15. Brooks, AB, Canada: A 9-block walk to symbolize the 9 months of pregnancy, with Atrimester@ information provided every three blocks. At the end of the walk the handouts were assembled into a picture of a healthy bouncing baby.
  16. North Vancouver, B.C., Canada: Co-ed sweatlodge held by AChange of Seasons Society@ with traditional pipe ceremony, prayers at 9:09 a.m., on Capilano Reserve.
  17. Port Orchard, WA, U.S.A.: Bells of United Methodist Church, at the edge of a scenic hilly bay overlooking the Pacific, plus prayer ceremony. Bells were heard for miles and miles
Fun gear buttons - t-shirts - drinkware - office products



Wednesday, July 25, 2012

#46 Days To FASDay - Join or create an easy survey

Conduct a Simple Survey or Quiz
Easy to do...

Invite the general public to the 

Million Mind March FASD Awareness 
Link the quiz and invite friends to answer


Teen Survey -
  • At your high school
  • At the local mall
  • At your sports events
Conduct a FASD Teen Survey in your community. Just find one teen who knows 20 other teens, and you will be participating in a nation-wide survey. All this takes is a $5 donation to the teen who conducts the survey to pay for 20 mini candy bars.

The survey can be downloaded here.

Tuesday, July 24, 2012

#47 Days To FASDay - Host a mini-event non-alcoholic drink ideas

Organize a Mind Mapping Meeting.

If you have community interest and commitment already and want to move forward, and want to do more than just a one-day media event, then you are ready to follow the Prince George’s Northern Family Health Society model for community action.

If this is too overwhelming, then stick to something simple and easy, like the last idea here:

Host a Mini FASD Awareness Campaign!
This is great for the office - yours or your doctor's - or any reception area that will give you permission. Just a bowl of Snickers mini bars and some FASD Fact Cards are all you need. Details here.

Check out NON-ALCOHOLIC DRINK RECIPES

FEATURE SITE OF THE DAY - KENTUCKY www.kyfasd.org 

This set of words means different things to different people.

To a pregnant woman,
it means that she chooses not to drink for the health of her baby.
To a doctor,
it means sifting through information to come to a correct diagnosis.
To a teacher,
it means learning to look at behaviors in a different way.
To a parent or caregiver,
it means trying new things and reaching out for help.
To a couple planning a pregnancy,
it means thinking ahead and avoiding alcohol.
To a pregnant woman with alcoholism,
it means courage to ask for help.
To a community,
it means responding with compassion, understanding and new eyes.


  • Baby Love Activities  BRAND NEW: BABYLOVE PRESENTATION for middle / high school students! (Includes powerpoint with facilitator's notes and two optional video links, and three optional handouts / activities.)                

  • Advocacy Guidebooks  These two advocacy guidebooks can be filled out by parents / caregivers, then given to new therapists, teachers, etc. (They are identical, except one references FASD, while the other only mentions "brain differences".)


OTHER GREAT SITES

  • The Substance Abuse and Mental Health Service Administration funds the FASD Center for Excellence, a clearinghouse for FASD resources and materials: http://www.fasdcenter.samhsa.gov/index.cfm
  • The National Organization on Fetal Alcohol Syndrome is dedicated to eliminating birth defects caused by alcohol consumption during pregnancy and to improving the quality of life for affected families and individuals:    http://www.nofas.org/



Online Manual - www.fasday.com
Seminar - Or try our easy, effective, exciting 1½ hour program that walks you
 through the morning of Sept.9: http://www.come-over.to/FASDAY/ABCDEFG/ 
(material from 2002 has excellent ideas)


Follow us through the next 60 days and plan your local or personal project to build awareness of fetal alcohol spectrum disorder - Each One Can Reach One!

Need family support visit www.toolboxparent.com
Need ideas for adults living with challenges of FASD visit www.braidedcord.net
Need information on fetal alcohol spectrum disorders visit www.betterendings.org
Interested in service dog for FASD visit www.thechancerchronicles.com